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Wednesday, March 27, 2013

Updates from IEP-Land

I wanted to give updates on Lina's and Evan's progress at school- lots of learning going on!  I have meetings coming up for both to go over assessments and discuss services they will receive over the summer.  Let's begin with Polina....

Mike and I have been AMAZED at Lina's progress since she began Kindergarten just a couple months ago. To review- she attends the same public elementary school as Kaylin and Justin and is in a mainstream Kindergarten classroom.  She is pulled from class throughout the day for special ed services and therapies, and is with her class for parts of Language Arts and Math as well as specials (Art, Music, Media, Phys Ed, Health), lunch, and recess.   I am attending another MER and IEP meeting for Lina since the school did more assessments to update the assessments she was given over the summer, and she has already reached some of her goals in her original IEP!

Her speech is already improving- she's saying some words much more clearly, and adding more beginning and ending sounds.  She still signs a lot to fully communicate her wants/ideas, but speech is definitely coming along. Yay!  She has also been evaluated to begin using assistive technology to communicate at school- either with an electronic device or a PODD- both containing picture symbols; the electronic device would contain a voice output system to help her make herself more intelligible and participate verbally in her classroom setting.   If you are not familiar with a PODD- here is a sample page they used with Polina to evaluate her use with it while playing with blocks.

Typically, a PODD is a thick, spiral bound book containing pages and pages of these symbols to use for different subjects.  Lina was able to imitate language modeled and initiate using the PODD to request more blocks, knock them down, put on, look, and done.  And this not only helps her verbalize, but also helps her understand directions, questions, and comments with the help of the visual cues- the adult asking questions or giving directions would point to the pictures also while they are speaking.  Exciting stuff! :)

More progress: Lina can identify most all the letters of the alphabet with an occasional error, as well as the sounds they make... AND she is starting to sound out three letter words and read sight words!  She is learning to write her name, and is working on tracing numbers, letters, and words.  Here's her very first autographed self-portrait!


And just FYI- if you are interested, you can purchase this beauty which is up for auction in my friend Jaime's Artists with Special Needs Auction!! The proceeds from Lina's self-portrait will go right to ROOF, and the current bid is $25. :) Check out all her other items too- auction ends April 9th!

Back to Lina's progress- she is working on counting and numbers- for some reason she consistently skips the number 3- she will sign it, but when counting aloud she will go straight to four.  I think a lot has to do with her inability to actually say "three" so she just moves on to the next.  She is also identifying and sorting colors and shapes, and comparing quantities.  It is just amazing how quickly she is picking up on things!

And now, on to Mr. Evan. :)  To review- Evan attends a special ed preschool program through the public schools 3 mornings a week, and attends a private Christian preschool with a one-on-one aide 2 mornings a week.  Evan has been making slow, steady progress toward most of his IEP goals, but I do have some concerns.  I am just not sure how much he is getting out of his special ed preschool class since most all his therapies there are in a group setting.  I believe he needs more one-on-one time to really make progress.  His next IEP meeting is scheduled for May, so I am hoping to learn a lot more about the progress he's making as well as pushing for some changes.  It's been difficult for me to really gauge things since he no longer receives his therapies at home, and I have very little communication with his therapists to know how he's doing day to day or week to week.  I get his IEP progress reports home quarterly which helps some, but I'm not always seeing the same progress at home.

My main concern for Evan is his speech since he still has no oral words for the most part.  Occasionally he will say a vowel sound repeating words or sounds from his learning videos, but he really does not vocalize for me on request. And honestly, he's not really signing to request either, and I know a lot if not all of this is my own fault for not requiring him to do so.  I know what he wants but I don't make him communicate it appropriately- so easy to fall into this pattern with the second, third, or fourth child!  Though just today I went in to help at his Christian preschool class, and the teachers swore he said the words, "green" and "square"!! I was floored!  He does receive one-on-one speech therapy once a week at the Christian preschool, and his therapist is able to get him to perform most days. The biggest challenge with Evan is getting him to perform on request.  He is good for doing things on his own terms, but it's really difficult to tap in and see exactly what he knows since he's not always willing to cooperate.  He will point to colors when he wants.... he will point to letters when he wants.... he will do puzzles when he wants.... but he's not always in the mood!  I worry that his teachers will not get a clear picture of everything he knows since he doesn't always want to perform.  I'm sure a lot has to do with his age and maturity level- he's still in the toddler "go go go" phase and is constantly on the run.  He can't be bothered to sit and attend for too long, though he is getting better.

His latest progress report from early March is marked "Making sufficient progress to meet goal" on every goal listed, but honestly I'm not totally convinced that is true.  Very interested to hear what they have to say at our meeting in May. Below are his goals listed on his IEP:

Independent Living Skills: feeding himself with a spoon, drinking from an open cup, buttoning large buttons, dressing and undressing himself for toileting (no, we have not even begun potty training but that's another story!) as well as putting on/taking off coat, improving tongue retraction and lip closure while drinking from a straw, moving food side to side in his mouth, biting through meltable foods;

Speech and Language: following one step directions; identifying familiar pictures and objects from a field of at least 2 pictures/objects; understanding inhibitory words such as "wait", "my turn", and "stop" by pausing; increasing vocal repertoire to include at least 3 new vowels and 2 new consonants; increasing sign vocabulary to include an increased number of nouns, action words, descriptors, and social conventions; imitating at least 4 new words; spontaneously labeling at least 4 more people or familiar objects/foods using word approximations or true words; requesting at least 5 new objects, toys, and/or food/drink items; answering simple "what" and "who" questions; requesting help with activities; answering simple yes/no questions.

Academics: identify, match, and categorize objects and pictures based on their function or use (what do we eat, ride on, wear?); in a field of 4 pictures, identifying action words (playing, eating, hiding); identifying emotions in pictures; identify, match, sort, and group items into categories based on attributes (color, size,shape); understanding quantity by handing the appropriate number of objects requested; demonstrating an understanding of quantitative concepts (all, some, none, and many).

Social Interaction Skills: interacting with one or more peers by initiating greeting, taking turns, and maintaining proximity during play; participating in pretend play schemes with peers and adults; following rules for structured activitieswith verbal cues, signs, or gestures from peers and adults.

Fine Motor and Gross Motor Skills: utilizing a functional grasp using a writing tool with faded assistance for positioning; copying block designs of 4 or more pieces; imitating a circle; snapping with scissors; walking safely and independently on various surfaces including tile, cement, carpet, and grass with decreased base of support; walking up 4 steps with alternating feet on each step with support of one rail; walking down 4 steps with two feet per step or alternating feet on each step with support of one rail; decreasing his base of support and improving balance skills by attempting to walk on a line keeping at least one foot on the line for at least 6 feet.

Whew! That's a LOT of stuff for a 3 year old!  I do believe Evan is making progress in a lot of these areas, but again, look forward to hearing more details about what he is displaying at school.  Hopefully I didn't bore you to death with all this IEP stuff! :) 

Monday, March 25, 2013

Spring Snow Day

Evan expresses my sentiments exactly regarding today's snowfall.


Snow is nice in January and February.... hey, we all dream of a white Christmas, right? But March?? After Spring has supposedly begun?? Phooey!!  Too many Easter preparations to be done and not much time left to do them!


Lina's a little snow bunny- must be in her blood. ;) She enjoys going out and playing- made her first snow angel today!  She had a good teacher....



Evan did tolerate some sledding- he seems indifferent, but at least he doesn't cry. 


But all in all, he really could do without the white stuff.


He has trouble walking around all bundled up and in his heavy boots.... after a trip down on the sled he's up and running down the sidewalk. Gotta get away!!  We did manage a smile when reciting lines from one of his favorite books though...




Justin getting buried by Kaylin....


The girls building a snowman together


Justin sledding and goofing around

I didn't get many photo opportunities since as usual, I was toting Evan around... we finally just hung out on the porch a little while before going inside.


C'mon, warmer temps!!!

Wednesday, March 20, 2013

{almost} Wordless Wednesday: My loves left behind

My sweet loves back in Belskoye Ustye, Lina's former institution.  Oh how I love these sweet children!  They ALL deserve loving families!! Thank you, ROOF, for giving the children these wonderful opportunities.  How many orphanage workers are going to let children get messy with paint or make lots of noise with instruments? That's right- NONE.


Friday, March 15, 2013

Happy "Da" Day, Lina!!

Cannot believe it's been a whole year!  One year ago today, on the Ides of March, a judge said "da" and declared Lina OURS.


Just the day before court we had our sole visit that trip where we were greeted with the most intense ponytails we had ever seen! :)


I will never forget the orphanage director warning us before we went to see Lina that she would be scared... she wouldn't remember us since it had been 4 months since our first trip to meet her.


But she DID remember.  She smiled and sat right down, waiting for us to come greet her, and she leaned in to nuzzle my nose just as we had done 4 months prior.  Melt. My. Heart.

I will also never forget how I thought for sure I would end up in a Russian hospital and not even make it to court since I was so ill when I woke up that morning! Thank GOD He had my back!  Court was a breeze and we couldn't be more happy!!

It is surreal looking back at these photos since Lina has changed so much.... physically she has grown like a weed, and emotionally she has BLOOMED.


This photo was just taken yesterday after we received Lina's gorgeous, traditional Russian dress in the mail! One of our dear adoption friends picked this up for us on her last trip- they were one of the very last US families to bring home their child.  We continue to pray for the children we left behind, and pray for ROOF's success in helping to not only care for and educate the children but for their future plans to bring the children out into the community as well!  So much is in store for their summer camp this year!!  We also pray that funds continue to come in so they can bring their much needed work to the Bobrovsky institution.  Oh these children so desperately need ROOF's aid.  I know I keep going back to ROOF- they do amazing things for these children, and I left part of my heart there in Pskov.  I cannot wait to share their plans for this summer and for the future!

Back to Lina- her latest accomplishment was this morning: making fishy lips in the mirror :)


She was doing it over and over, and cracking herself up!




It's the little things, just as much as the big things.  How often did she see herself in a mirror before she came home?  Was she ever allowed to be silly in the mirror?  So many little things we don't even think about are brand new experiences for Lina.

In school- since beginning kindergarten in January (though not full-time until February) Lina has learned almost the entire alphabet including the sounds the letters make.... she has learned her numbers and is counting (though she likes to skip the number three- perhaps because it is difficult for her to say)... she is tracing letters and shapes and beginning to write her name... and she is sounding out words.  All this in a matter of weeks when in Russia she was deemed ineducable.  Our social worker comes again this weekend to complete our one-year post placement report, and as always I cannot wait to brag about our sweet girl and all her accomplishments!

Polina, we love you SO very much.  We are so thankful that stone-faced judge said "da" and proclaimed you OURS.  We are so forever thankful we were able to get you home when we did.  It is so difficult to remember life without you! xoxoxo

Friday, March 1, 2013

Storybook Character Dress Up Day!

To wrap up Read Across America Week, at school they have character dress up day on Friday! :) So fun!


Evan has hat day today- I'm thinking the teacher uses it as an excuse to wear her Dr. Seuss hat ;)  Getting Evan to keep a hat on his head though... OY!  I struggled to keep it on his head just to snap the picture!!  

holding it in the air- too slow, Mom!!

keep tryin...

Almost... (of course the little turkey was giggling and cracking up the entire time)

Alright, time to pull the big guns and get Kaylin to help...


He is so cute in a hat!  Will see how long the teacher tries to get him to keep it on. ;)

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